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NHS DIGITAL – GENERAL PRACTICE DATA FOR PLANNING AND RESEARCH (GPDPR)

IMPORTANT UPDATE JULY 2021

The current NHS Digital (NHSD) extract of GP data for Research purposes (known as the GPDPR) has been delayed due to NHSD wishing to review the way in which this data will be collected, to conduct more public involvement and information about the plans and change the way in which patients can opt out of the extract of their GP data.

Currently the only way to opt out is to complete a Type 1 opt out form and return this to the practice by the 1st September.  However, this extract will not be taken until the NHSD have changed the way it will take the data and respect the patient’s choice for using their data.  NHSD are introducing the following changes to the opt out process which will mean that patients will be able to change their opt-out status at any time::-

  • Patients do not need to register a Type 1 opt-out by 1st September to ensure their GP data will not be uploaded
  • NHS Digital will create the technical means to allow GP data that has previously been uploaded to the system via the GPDPR collection to be deleted when someone registers a Type 1 opt-out.
  • The plan to retire Type 1 opt-outs will be deferred for at least 12 months while we get the new arrangements up and running and will not be implemented without consultation with the RCGP, the BMA and the National Data Guardian. 

This means that you can opt out at any time in the future and NHSD will delete data that they already have taken for research purposes, the deadline of the 01/09/2020 has been delayed until a new system of opt out is developed.  Hopefully, this will be a simple centralised approach via the NHS app or NHS website to avoid paper form and administration work for your GP.

We will update you when we know more about the NHSD plans to change how you can control who has access to your data.

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For full information on the planned uploading of GP Medical Records, visit the NHS Digital site by clicking here.

After reading this information, if you choose to opt out and prevent your data from being extracted, you will need to complete a Type 1 Opt Out form, sign and return to the surgery.

National Opt-Out Facility – You can also choose whether your confidential patient information is used for research and planning.

You can make your choice by clicking here or by calling 0300 303 5678

You can change your choice at any time.

For key information on both Type 1 Opt-out and National Data Opt-out, look here.

To view WRMC Privacy Notice click here.